Frappr Map FAQs

It's very exciting to see all the lovely faces on the map! I'm especially enjoying watching our numbers in the EU and UK growing. I have a special fondness for the UK, since my husband is a Yorkshireman..., and for France, since we recently spent a few years living in Paris and Clermont-Ferrand.

In case you all have any questions regarding the Frappr Map, you might find the answers on their website. Simply CLICK HERE to visit their FAQ page.

I'm still trying to work out (hopefully, with help that powers the be at Frappr) how to add more pins for:

1. WM Cancer Treatment Centers

2. WM Support Groups

3. WM Oncologists

When I'm able to get this figured out, you'll see the appropriate pins on the map.

FAQs, so far:

1. I put my pin on the map and the location is wrong... How do I fix it?

Here's how to change your location on Frappr:

1. Log into your profile
2. Click "Edit Profile" at the top of your Profile page
3. In the location field, enter your city, town, village, or US Zip Code or address
4. Click "Save" once you've verified your location in the location field.!

Alternately, you can click "Advanced" under the location field to customize your location. Here's how!

1. Click "Advanced"
2. In the location field in the new window, enter your town or city, or US address.
3. Then click "Update"
4. Your location should come up on the map below the field. (Please note that smaller towns and some suburbs may not yet be in our database.). Click around on the map to move your marker to the desired location
5. Once you've found the perfect position for your marker, click "Use this Location"

2. How can I add myself to a Map?

It's easy! Here's how you add yourself to a Map:

1. Log in to your Profile (or, if you don't have a Profile, don't worry! We'll make one for you automatically when you add yourself to a Map. If you don't have a profile, just go to www.Frappr.com, click "Maps" at the top, then go on to #2 below)
   Find a Map that you'd like to join
2. In the "Add Yourself" section on the right, fill out the required information
3. Click "Add Me!"

3. My Name/Location/Pushpin Color is wrong. How do I fix it?

So far, the easiest way I've found is to remove your pushpin, and start over. :)

4. I'm concerned about my privacy.

See previous blog entry.

5. I have a blog (and/or website) and would like to put the Waldy-Mac map on my blog. Is this possible?

Yes..... If you'd like to put the Waldy-Mac Map on your blog, simply CLICK HERE to contact the administrator.

Waldy Map Information

Some thoughts before you tack your pushpin on the map.

1. If you're at all concerned about privacy issues, please consider the following before adding your pushpin:

• Instead of using your full name, consider using only your first name and last initial; first name only; nickname, etc.
• In the address box, simply put your zip code.
• If you're really, really, REALLY concerned about privacy issues, then only enter a zip code, and check whether you're a WM male, female or caretaker.

2. It would be great if you had a photo to post. Anyone needing assistance editing a photo, I'm happy to help. (I'm very much enjoying putting faces to names. Great photos!)

3. LEGEND: You'll find the following catagory options to choose from, when you begin the process of adding your pushpin. If you're a WM patient, please don't put a "visitor" pushpin, since those will most likely be deleted. Why? The goal of the map is to show where WM patients, caretakers, etc are located.

Blue Dot = WM Men
Red Dot = WM Ladies
White Dot = WM Caretakers
GOLD DOT = Visitor (no longer an option, not that we don't LOVE visitors)
Yellow Square = WM Oncologist
Blue Square = WM Support Group

4. If you need any help along the way, please send me an email. I'm happy to help figure things out with you. So far the response to the map has been totally positive, and I can't tell you how much I appreciate your input and cooperation. WMers ROCK!

ENJOY

UP AND RUNNING

Greetings and Salutations.

I'm happy you've stumbled upon this blog.

If you're a Waldenstrom's patient or caretaker,

please scroll down to the map below.

I thought it would be interesting to see

how many WM patients are out there,

and where they're living and coping with their disease.

While you're here, if you've not heard of the

International Waldenstrom's Macroglobulinemia Foundation,

do be sure and visit their website.